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Speaking about Parkinson's Disease

Talking with your friends and loved ones

Talking about Parkinson’s can be difficult because most people are afraid to ask, and the last thing you want is for them to react in a way that makes you feel even worse.

There will be times when it is easier to speak about Parkinson’s than others and often it is better to speak about practical issues related to how Parkinson’s affect your life, rather than pouring each other’s heart out every time you meet.

No one can tell you what you should think and feel about your condition but you should try and speak about it in a way that is helpful and you can both handle.

What do you say and how do you say it?

You can say as little or as much as you want about how your condition affects you, as and when you are ready to do so. But keeping it all to yourself can become a huge burden and in the end cause more distress to you and those around you.

It is often difficult to express how exactly you feel about living with Parkinson’s disease, particularly when there’s so much going on around you and in your own head. But speaking about what’s playing in your mind is likely to make you feel better and help you find practical ways to cope with the disease and its challenges.

It is not a question of getting it all out every time you speak about Parkinson’s to someone but rather saying whatever seems relevant to you at the time.